The old Infectious Disease Society of America (IDSA) guidelines have been
removed from the National Guideline Clearinghouse. They never did comply
with the Institute of Medicine’s standards for developing trustworthy
clinical practice guidelines or with the GRADE (Grading of
Recommendations Assessment, Development and Evaluation) standard for rating
evidence and recommendations.
In 2006, shortly after the IDSA guidelines were published, the Attorney
General of Connecticut filed an antitrust investigation. The IDSA agreed
to review its guidelines, and eventually released its findings in 2010.
They recommended 25 changes to the guidelines, but never implemented them,
and told the NGC that there was no need to change the guidelines.
For more historical information, click
here for an article by Lorraine Johnson, JD – a long-time advocate for and supporter
of adequate treatment of patients with Lyme disease, and one of the authors
of the ILADS (the International Lyme and Associated Diseases Society)
guidelines, now currently the only guidelines for treatment of Lyme disease
on the NGC clearinghouse website.
Your insurance companies have been using those outdated and unsupported
IDSA guidelines ever since, and mostly have denied antibiotic coverage
for more than a short period of time for persistent symptoms compatible
with Lyme disease, as recommended in the ILADS guidelines.
Now you have another reason to re-open the discussion with your insurance
company. If you have been diagnosed with Lyme disease – whether
by CDC criteria, IGeneX criteria or simply by clinical criteria, the ILADS
guidelines are the only accepted national guidelines for diagnosis and
treatment of Lyme disease – whether acute or long-term “chronic”.
For more information about Lyme disease, click
here. For information about Lyme literate doctors in your area, click
For a free 15-minute phone consultation to see whether we can help diagnose
or treat you, please call 480-240-2600 to speak with our new patient coordinator
and schedule the appointment.